I think it’s time for a new update….
I’m taking the natural drops (and painmeds, betablockers, anti-inflammatory drugs and so on…) for three months now. I feel my body is still recovering from the year of antibiotic attacks. And I think the natural drugs may not be underestimated. I’m still not on the full dose yet!And it can also give some strange effects when I build up to fast. Still confusing… Always afraid that the Lyme/barto is becoming worse.
I’m still spending all day in the couch. Still experiencing severe fatigue, but I already have days where this symptom is at the background as I lie down. I try to do something small each day but I still have to take rest after a little effort, like doing the dishes and so…Sometimes I can be so stubborn that I’m forcing myself to do more. Then I have to pay for the rest of the week. I fall into that trap very often ;-). Because I just want to be healthy so badly.
The pain is mostly controllable with meds. But my body still feels inflamed, everywhere. I wonder what the test results will bring, because my last tests weren’t that good. But I’m glad that the pain attacks, where I’m balancing between being conscious and unconcious(what’s really hard and freaky)are less…
My head still fills heavy. The lack of blood flow to my brains, is still a big issue. My view is often obstructed and I can not concentrate. I often try to read an article, but it takes way to long to go through it. Resulting in more complaints. (sigh)…
Every two months ( sometimes often, sometimes less…depends on how my condition is) a friend takes me to a tearoom or to go watch a movie. You learn what people really care about you and for who it’s not important. It’s confronting and painful… But at the other hand you learn to balance your energy. And to not using it anymore for things you don’t get mental energy from.
I enjoy spending time with my dog, my cats,… I’m really becoming good friends with silence :-). Good for me, because very often I forget words and my senses draw nothing…It’s so embarrassing…
I also meet new people, although over the internet, who also have lyme. Nobody can understands more what you’re going through than those people. Although the complaints are different for every lymepatiënt.
We also work on a lyme association. It’s important to sensitize people to the fact that lymedisease is more than just feeling fatigue. It affects many body parts! And since there is no bell ringing at the government,are we,Lyme patiënts, forced to do it ourself… While dealing this disease. So it will take a while. But the time will come that they must open their eyes, before there are to many victims, including society!